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CFLIVING.bmp

A Rockin’ New Resource: CF Living

Here at the Rock CF Foundation, we are committed to helping friends, family and the community-at-large learn more about cystic fibrosis.  We are always on the look out for relevant tips and strategies that can help make dealing with the condition more manageable.  One new resource that we have found valuable is CF Living, a new, free online program designed to provide educational materials and supportive resources to people affected by CF.

CF Living offers regular educational updates on cystic fibrosis, practical tips for making the most out of appointments with healthcare professionals and additional resources that offer patients and caregivers support in dealing with the disease.   


By enrolling in CF Living, registrants will be able to take advantage of the following:

  • A Personalized Care Team Discussion Guide with tips for how to engage in an open dialogue with your Care Team members along with suggested questions to help start an informed conversation
  • A series of educational e-mails to help you learn more about cystic fibrosis and what can be done to manage it
  • Access to online resources that may help you continue learning about the disease

To enroll in CF Living or learn more about the program, visit www.CFLiving.com.  The program was created by Genentech, Inc. as part of the company’s continued commitment to providing information and resources to individuals with cystic fibrosis and their caregivers. 

Thank you to all!

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Thanks to everyone who attended Just Let Me Breathe 2008! The night was simply magical and those who came were there to Rock Cystic Fibrosis. Pictures will be posted very soon but take a look at this video clip of the finale, it’s F*U*C*F and kind of an all star jam!

Rock CF’s Biggest Event is this Saturday!!

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Join the Rock CF Foundation and hundreds of others at the Royal Oak Music Theatre Saturday March 15 for the 5th Annual Just Let Me Breathe benefit concert. This is the biggest event that the Rock CF Foundation produces and promotes so make sure you are there.

The show begins at 7pm and goes until midnight. There are six awesome bands playing and many other things happening.
Here are some things to do at Just Let Me Breathe 2008:
*Win a Reverend Guitar, an iPod Touch, a Schwinn Cruiser bike or tickets to The Color Purple with dinner at Cuisine.
*Pick up your JLMB 08 merch and the newest Rock CF tee shirts printed on organic and eco friendly shirts.
*Buy Detroit Rocks CF Volume 2 featuring 16 Detroit bands rocking out for CF.
*Help Emily get on ELLEN! (this is an email campaign happening in the lobby of the theatre)
*Come have a blast and know that the money you spend is going to help people with cystic fibrosis live longer and more fulfilled lives.

The show is All ages, tickets are $20 and available at the door, cameras are not allowed (email emily@letsrockcf.org for more info on that).
If I left anything out scroll down, there should be more details down below.
Rock CF and see you all very soon,
Em