The Rock CF Boltcast is a video podcast program that focuses on the importance of physical well-being and mental health for people with CF of all ages, including CF parents/caregivers. This is a chance to showcase incredible individuals living with CF and the amazing things that our community is accomplishing everyday!
"We have to start with the very basics of getting out of the box of what we thought cystic fibrosis looks like."
Mother/daughter duo, Reba and Kylea have an incredibly unique perspective on what it's like living with CF. Learn about Kylea's ongoing experiences growing up with CF, Reba's long journey to a late-stage diagnosis, and advocating for each other's health, as well as BIPOC representation within the CF community.
This episode of the Rock CF Boltcast is sponsored by #Vertex.
Dylan Mortimer’s story is nothing short of incredible. As an artist, Dylan has repurposed his experiences and life events with visual storytelling as a medium to continually advocate for the cystic fibrosis community.
Learn about his journey through two double lung transplants, becoming a father, experiencing the rapid changes within the world of CF, and what led him to pursue his passion of creating art.
This episode of the Rock CF Boltcast is sponsored by #Viatris ⚡️
“It’s a blessing to be 50 years old, live through a few transplants, to be able to live life happily, and to get to do the things that I never thought I was going to do when I was younger.”
Throughout a life with cystic fibrosis that has been met with life-altering challenges, transplants, and adversity, Frankie Avila has persevered. Across the ups and downs, Frankie has continued to live life to the fullest and advocate for those within the CF and transplant communities.
This episode of the Rock CF Boltcast is sponsored by #Vertex.
“I never knew I was supposed to breathe like this.”
Cystic fibrosis is most commonly diagnosed before the age of two, but not in all cases. Learn about Skyler Petty’s adult CF diagnosis, her journey to adjusting to a new normal, and becoming a part of the CF community.
This episode of the Rock CF Boltcast is sponsored by #Vertex.
EPISODE 14: KEVIN DWYER
“Don’t compare yourself to a ‘normal life’ because what you’re living is normal. It’s just your normal.”
Listen to Kevin Dwyer’s incredible journey from growing up with cystic fibrosis before advanced medical treatments, discovering a love for ballet and making a career in dance, and becoming a father.
This episode of the Rock CF Boltcast is sponsored by Vertex.
EPISODE 13: SOMER LOVE
“Cystic fibrosis is on my mind the minute I wake up to the minute I go to sleep because it has to be.”
Somer Love knows what it takes to continue showing up with cystic fibrosis. Listen to Somer’s journey growing up with CF, becoming a voice for the community, and finding the strength to continually adapt to each new challenge that presents itself.
This episode of the Rock CF Boltcast is sponsored by Vertex.
ENDURE MORE: STEVEN STRICKLAND
Steven Strickland knows what it means to endure a life with cystic fibrosis. After multiple bouts with mycobacterium avium, abcessus, and heart failure, he now finds himself awaiting a new set of lungs on the transplant list.
But with each new challenge, Steven consistently finds a way to push forward with a powerfully optimistic attitude while investing time into growing his own company, Giant Helmet into a multi-national success.
Warning: The content of this video will have images, topics, and content that can be emotionally challenging or distressing. Please watch at your own discretion.
The Endure More program is sponsored by Vertex.
EPISODE 12: STEPH HANSEN
“Do what you can with what you’ve got.”
In a time where modern medicine and treatments have continued to advance lives in the world of CF, Steph Hansen offers their voice to advocate for those in the 10% with a rare or nonsense mutation who have not qualified for these advancements to ensure nobody gets left behind. The work isn’t done until it’s done for everyone.
This episode of the Rock CF Boltcast is sponsored by Vertex.
EPISODE 11: ALEX ASHBY
"Although my path to motherhood was extremely rocky, I would go through it 100 times to have my son."
As we approach Mother's Day, we meet up with Alex Ashby. Alex takes us through her own CF diagnosis, the journey of becoming a mother to a child with CF, and her experiences with postpartum following her son's birth and diagnosis.
May is #CFAwarenessMonth. This episode of the Rock CF Boltcast is sponsored by Viatris.
EPISODE 10: BRANDON MILLER
"I pushed through what I thought were my limits, and now I feel almost limitless."
Brandon Miller takes us through his physical and emotional journey of growing up with CF, discovering a passion for exercise, and his lead up to conquering a full Ironman.
This episode of the Rock CF Boltcast is sponsored by Vertex.
EPISODE 9: GAVIN GROETTUM
On this episode of the Boltcast, we catch up with Gavin & Jennifer Groettum.
Gavin and Jennifer take us through their journey of discovering cystic fibrosis, his love for hockey and golf, and growing up in a "new generation" of CF.
Sponsored by Vertex.
EPISODE 8: KAYLA ENGLISH
"Life's too short to not enjoy what you're doing."
Meet Kayla English. Learn about Kayla's childhood journey, finding balance managing CF as an elementary teacher, and discovering a passion for weight lifting.
This episode of the Rock CF Boltcast is sponsored by Genentech.
EPISODE 7: NICK KELLY
"Life is better when you find passion."
Nick Kelly utilizes his CF journey, passion for the arts, and creative expression as inspiration for the CF community to focus on their mental health and using their voice for change.
This episode of the Rock CF Boltcast is brought to you by Genentech.
EPISODE 6: CHRIS VAN TIEM
"You're just as capable of doing whatever it is you want to get out of life."
Meet Chris Van Tiem. Chris brings us along on his journey of growing up with CF, discovering the benefits of exercise and treatment compliancy, and using his voice to inspire others living with CF to continue pushing themselves to reach new goals.
This episode of the Rock CF Boltcast is sponsored by Genentech.
EPISODE 5: COLLEEN LEWIS
Meet Colleen Lewis. By channeling the highs and lows of her CF journey, Colly uses her abilities as a yoga teacher, meditation instructor, and recovery space holder to help others living with CF find their "Calm Through the Storm."
This Boltcast is brought to you by Genentech.
EPISODE 4: BRIANA CALDWELL
"I am able to enjoy the things we do now instead of just checking it off the list."
On this Rock CF Boltcast, we catch up with Briana Caldwell! She's an incredible mother of three, a collector of creative things, and an exercise enthusiast.
This episode is sponsored by Vertex.
EPISODE 3: KYLE WATANABE
On this episode of the Rock CF Boltcast, we catch up with CF triathlete, Kyle Watanabe!
Kyle brings us along on his journey of managing a decline in health, becoming a father, and ultimately training to become one of the only people with CF to conquer an Ironman triathlon.
Sponsored by Vertex
EPISODE 2: ELLENOR & THE KAVANAUGH FAMILY
On this episode of the Rock CF Boltcast, we want you all to meet Ellenor & the Kavanaugh family.💜
The Kavanaughs put their all into getting the most out of life by experiencing as much as it has to offer, whether that be running, horseback riding, riding bikes, or singing!
This episode of the Rock CF Boltcast is sponsored by Vertex.
EPISODE 1: MEGAN BARLOW
On our first episode of the Rock CF Boltcast, we catch up with Megan Barlow (@megs_salty_cf_life). Megan is an avid runner, ultimate frisbee player, an incredible voice in the CF community, and the creator of the 65 Roses Race.
Sponsored by Vertex
